Adults Becoming an Advocate
The more you learn about hemophilia and insurance, the more effectively you may be able to advocate for your rights.
Here is some information to help you stay up-to-date on legislative and advocacy efforts related to hemophilia coverage.
Become Your Own Best Advocate
You can be your own best advocate on both an individual and a community level. The following websites will help you to learn more about how you can get involved in local and national advocacy efforts:
At a national level, the NHF sponsors an annual legislative advocacy conference called Washington Days. You can join others at this conference to request support for increased funding for treatment centers, the elimination of lifetime caps on private health insurance policies, and adequate Medicare payment for clotting factor.
Visit the Advocacy Center on the NHF website to learn more about Washington Days.
Learn More About Hemophilia Advocacy Resources
Learn how you can make a difference in 5 minutes by visiting the HFA's online legislative action center. This site will help to educate you about your elected officials, current issues and legislation, election and candidates, and the media. Ask your treatment center or chapter about an interactive Consumer Advocacy Workshop sponsored by Baxter.
You can also join your local chapter's government affairs committee, or start one.
For additional tips on managing your insurance costs, contact your local treatment center.
Note: These links are provided for your convenience. However, they lead to external websites not created, managed, or maintained by Baxter. Baxter is not responsible for, and does not necessarily endorse, the opinions or therapeutics represented on these external pages.